| 单词 | rare disease uk |
| 释义 | Rare Disease UKRare Disease UKA national (UK) alliance for people with rare diseases (termed “orphan diseases” in the US) and their supporters, which was established in 2008 by Genetic Alliance UK, a mega-charity with over 140 organisations supporting patients affected by various genetic conditions, as well as other key stakeholders. Nearly 20% of people with a rare disease suffer from their disease for 5+ years before they’re diagnosed; 10% suffer for a decade. |
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