"This is just a quick snapshot," said project lead Will Dixon, a rheumatologist and professor of digital epidemiology at the University of Manchester.

After seeing two neurologists, a rheumatologist and a hematologist, Bogner was told that she had primary idiopathic EM — meaning the cause was unknown.

Not a GI thing, that specialist told them, and he referred the now nearly frantic family to an infectious disease specialist and a rheumatologist.